my zen among zen

Being a mom and having a child that counts on you to be there to be his voice is the most powerful job out there. I know that his Dad shares this job and for that I am so indebted. Being that there aren’t the best moments for me to get away its important for me to still maintain my sense of me. My husband purchased me a spa session here a few years back and I always seem to come back. There is something about the atmosphere and the open ambiance that enduces relaxation for me. Leaving my kids isn’t fun for me unless well I’m being spoiled. This place is called the Bergamot Spa

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the peach in me.

Getting to experience Georgia with no kids and my husband was amazing. We took off and he scared the shit out of me in regards to the turbulence. We drank entirely too much vodka. Sorry liver. We hiked to a water fall and left our signature rock tower in nature. We made new friends and bonded closer with old. We have memories. Here are just a few from our little trip to Georgia.

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to throw you’re hands up.

When in doubt, cry. Yep. Cry it out. Things happen for a reason and reasons happen for people. We are in the process of purchasing our first home. Exciting right, NO its actually terrifying. I walked into a home yesterday on a tour and for sure thought we were all as a family going to be sold for body parts. No joke could see my liver in the fridge in a jar. Shane and I sanitized and returned to our cars strapped our kids in and thanked whoever is watching over us all that we made it out alive. However, things are moving forward. I am FAR behind on updating my work. Here are just a few things that have been filling my time…

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Time needs Cohen

I remember the morning of his appointment. I was in a frenzy trying to get my camera bag packed and Cohens diaper bag at the same time. Shoving diapers in my lens pockets. Stopping to laugh at myself then tossing memory cards in bottle slots. The morning wasn’t fluid. Shane and I have our kids down to a science. Borderline mathematical. Cohen and Shane and Kailyn were on their way to Cohens behavioral therapist appointment, and I was off to shoot a Bridal Shower. I set my phone up on FaceTime with Shane and the meeting began.

I asked questions but she asked more.  More and more. There was a lot of writing also, that makes me incredibly uncomfortable. Record that shit I talk fast… her hand looks undoubtedly sore and I have just begun. Shane chimed in several times and I assure you this was no easy thing for my inward husband. As I pulled up to my shoot we had our answer. Due to the fact that our Cohen was over 20 months and still not a talker, obsessive over wheels, aggressive when something is removed or the activity changes without warning, lack of acknowledgment of others feelings, and well I’m going to stop. Cohen was diagnosed a high functioning child with Autism.

There you have it. A diagnosis. An explanation. An answer.

Now, before I explain what I see. PLEASE keep an open mind because to us he is perfect. If you are not a parent to a child living with Autism you’re opinion is not wanted, warranted or going to change my views on him. I am sharing our journey through this because well, 1 in 68 children are diagnosed with Autism. Not one case of autism is the same. There are many different trials and many different strengths. If you are confused at all or are unaware please follow this LINK .

Here is Cohen’s diagnosis;

Parent Concern: his aggression and lack of vocabulary

Communication: limited words, says mama, dada, boat, water, bye, rara (sister), knows 2 body parts smiles and laughs or claps, follows an instruction to get blankie, pachi, throws away diapers, sometimes points at what he wants, grabs parents hands leads them to things.

Play: Cohen likes playing with cats and book and will bring them close in to examine them, gathers, carries around small items, tends to play “his way”, doesn’t like to play with sister, but stands at her door and tries to climb over gate.

Social: Minimal interest in peers, eye contact is not great but mother is trying to work on that- is up to 3 seconds, will frequently show parents toys, responds to name 25% of the time.

Interests/fears: loves his blankie, likes music, trains, cars, skateboard, studies how the wheels moves up close

Sensory Issues: may have high pain tolerance, prefers his favorite blankie, overwhelmed in crowded/loud areas, hides on couch when mother vacuums.

Repetitive or Stereotypes behaviors: repeats sounds, wants to watch the same movie over and over, slides at least 25 times in a row, wants same books, wants to brush teeth again and again, runs in laps and runs in circles.

Rituals/Adaptability to Change: struggles with changing from bath to bed, likes routines, if there are changes in routine he can be disruptive, eats a variety of food.

Safety: gets aggressive, runs away, even at the beach, bangs head on concrete or near bye surfaces.

Mood/Tantrums: hurts himself when he gets upset, can be unclear to why he is upset sometimes,

Strengths: can be enthusiastic, loves his family

ASSESSMENT: Cohen A Seal is a 21 month old male who shows strength in showing eye contact and socialization and some social interest in his family members. He is usually able to communicate his needs with his family who are warm and responsive to him. He eats and sleeps well. He enjoys books. He has a relative weakness in social reciprocity, lacks interest in peers, has frequent repetitive behaviors (elopement, hitting, biting, throwing objects, and hitting his own head or hard surfaces). I am concerned that the early onset of these repetitive behaviors along with other criteria will worsen over time if not given intervention sooner than later.

 

I snapped at Shane via FaceTime for asking her again what this meant, “Our son is Autistic SHANE”. I don’t know if it was because hearing it once was enough for me or that if I heard it twice it was more real. I’m ok now and so is Shane. We have our grown up panties (manties) on and are about to embark on this wild ride of trying to understand what is next for us and Cohen. I do offer any insight from other parent whos children live with Autism. Feel FREE to email ME.

Because this is so fresh and we are doing everything in our power to find our perfect fit for ABA, Speech Therapy and Occupational Therapy we are in a time of educating ourselves. We are asking for not only our family to respect our feelings but complete strangers as well to respect us as parents. You may see my son beating the shit out of me, but I see a little boy terrified and begging to be held and consoled. You may hear my son screaming or making noises you haven’t heard before, I hear tones of new words that may roll out of his mouth. You may see bruises on my body but I see times where I could have done things different to better the outcome or prevented it to begin with. Our lives are different and if you see us DON’T stare. We are on a different road than you and if your staring I don’t want to share that road. We are going to move on and forward with love.

“life is not life without love”- Gage Seal

 

 

 

 

 

 

coastal jollies…

This sweet tribe paraded around the beach with me. We mostly ran from the waves while trying to contain their smallest. This makes me appreciate the time I have with these families. It shows the reality of life with children. I face that reality everyday, so to see others with the same reality… priceless. Only the bravest have children.

Enjoy.

hiking to locations…

This is common. I assure you, I warn my client’s before hand if we will be harassing nature. Therefor, they dress accordingly. This tribe led me into the abyss…. and love them more now however my rainbows aren’t as happy with them. I couldn’t be more happy with the outcome.

Enjoy.